LifeNet

AANE’s “LifeNet” Independent Living Support Program

AANE now provides a case management service called LifeNet. This is a private pay, independent living support program for adults with Asperger or similar autism spectrum profiles. LifeNet is designed to address questions like:

"Who will support our adult child when we're gone?" – Parent

"How will I get the support I need to live on my own?" – Adult

LifeNet offers peace of mind that an adult on the spectrum will be supported as they navigate adulthood by a devoted team who understands them from the trusted AANE non-profit organization.

[Note: the video below remains relevant, but will be updated soon to reflect our successful program launch!]

What does the LifeNet program provide?

LifeNet offers caring support and companionship for adults on the spectrum across a full range of lifelong responsibilities and everyday tasks such as:

  • Maintaining a healthy and safe living environment in their apartment or home
  • Arranging and keeping healthcare and dental appointments
  • Managing budgets, bills and money
  • Tending to nutrition, food safety, exercise and hygiene
  • Engaging socially – around their interests and at their pace
  • Pursuing productive employment and/or volunteer opportunities
  • Developing executive functioning skills and strategies
  • Offering transportation and travel guidance, and more

Overall, the LifeNet Team offers personal support and advocacy, just as a parent would provide:

  • Regular phone/text check-ins and in-person visits
  • Monitoring and responding to changes in well-being
  • Responsiveness to questions or issues as they arise
  • Help weighing options and supporting good decision-making
  • Addressing unmet needs, and making progress toward personal goals
  • Coordination between providers, trustees and others in the adult’s support network
  • Help completing forms/paperwork and meeting deadlines

Who’s on the LifeNet Team?

More than just a single caseworker, each LifeNet adult is supported by a team of people who have experience in understanding and meeting the needs of adults on the autism spectrum:

  • Personal Advocate (clinical case manager) – licensed occupational therapist or clinical social worker
  • Support Partner – field-based direct support professional
  • Clinical Case Supervisor – licensed clinical psychologist
  • LifeNet Program Director – overall administrator and ombudsman
  • Host Family – volunteer local family who shares meals and companionship with a LifeNet adult
  • Peer/Friend – a similar-age adult peer matched from within the AANE community

Would you like to learn more about the LifeNet Team? Would you consider volunteering with LifeNet?

Come meet us at our Spring Info Session for prospective LifeNet adults/families - Thursday, May 16 @ 6pm!

Together, the LifeNet Team serves as both a safety net and support network of professionals and volunteers who develop relationships with and care for the adult, offering them a greater sense of community and belonging.

Who’s eligible for the LifeNet program?

To ensure we can meet the needs of all LifeNet clients who enroll in this new program, we’ve developed specific eligibility criteria to guide us, including:

  • Geography: adult lives within ~1 hour drive from AANE’s offices in Watertown, MA (if you're interested in LifeNet but live elsewhere, complete the form below so we can assess demand for possible expansion in 2020)
  • Age: adults 21+ (will consider younger adults if they are otherwise eligible)
  • Diagnosis: Asperger or similar autism spectrum profile
  • Co-occurring conditions (e.g. significant mental health issues): will be reviewed on a case-by-case basis
  • Level of need: adult should be able to live independently with support
  • Willingness: must be open to receiving support from the LifeNet Team
  • Client/family resources to fund program: see tiers and fees immediately below

What are the different tiers of LifeNet service, and how much do they cost?

Based on individual needs, resources, preferences, family involvement and other factors, eligible adults/families would be able to register for one of the three levels of LifeNet service:

Tier 1 (‘Comprehensive’ level): The top level of LifeNet service for adults and their parents who want or need to activate the full support team structure now, given their age, health status, geographic distance or other factors. Comprehensive offers the most time and frequency of interactions between the adult client and their LifeNet Team members.
Cost: $20,000/year, with a one-time in-take/personal plan development fee of $1,000.

Tier 2 (‘Basic’ level): A middle level of LifeNet service for those who need less time and support at this stage of the adult’s life than the Comprehensive level, but who want to put the support team in place now for a potential transition in the coming years.
Cost: $10,000/year, with a one-time in-take/personal plan development fee of $750.

Tier 3 (‘Introductory’ level): An entry level of LifeNet service, with less frequent interactions than the Comprehensive and Basic tiers, for those who want to begin establishing new support relationships for their adult child now, with an eye toward moving to a higher level of service if and when needed in the future.
Cost: $5,000/year, with a one-time in-take/personal plan development fee of $500.

Clients have the ability to move between tiers as their needs change.

Note: In order for AANE to cover our costs and launch this program in a financially sustainable way, there will be no financial aid available at the outset. However, we are actively building the evidence base proving the value of this new program, which we will bring to public and private funders to help make LifeNet accessible to all those who qualify, regardless of income or assets.

We’re interested in learning more. What is my next step?

LifeNet officially began supporting our initial group of LifeNet adults/families in January 2019. We will soon begin taking commitments to join our next group, who we'll start supporting in July 2019 (with intake meetings scheduled for June).

If you are interested in potentially joining our next group of LifeNet adults/families, please complete the form below and click Submit. We will then email you more information about LifeNet to help you decide and take next steps.

AANE LifeNet Contact

Jay O’Brien, LifeNet Program Director |  617-393-3824 ext. 60  |  jay.obrien@aane.org