The Experience of Patient-Centered Care and Communication for Adults with Autism Spectrum Disorder

Research Study

We are looking for adults (age 20 and older) with an ASD diagnosis to tell us about their experiences in healthcare. who meet the inclusion criteria screened for in phase 1 will be emailed a link to 6 long-answer free-response questions. These questions will ask about your experiences such as what is it like communicating with doctors., how your relationships are with doctors, whether or not you choose to have someone come with you to speak with your doctor etc.

Participants must: a) have access to the internet and a device on which to respond to survey questions, b) be comfortable reading and writing in English, c) have been officially diagnosed with ASD (or the former HFASD, Asperger’s Syndrome, PDD-NOS) and, d) be able to attend some medical appointments on your own (for example, without a parent, friend, or support person in the room with you and the doctor).

The study is completely online using Qualtrics online survey software and is made up of 3 phases.

Phase 1: Informed Consent, Demographic Questionnaire and Screening Questionnaire. Interested participants will be sent a link via email to take part in this survey. This phase will take approximately 20 minutes, and upon completion you will be entered into a draw for a chance to win one $15 USD dollar gift-card.

Phase 2: Long answer questions. Those Participants who complete phase 2 of the study will receive a $30 USD gift card in addition to their name being in the draw from phase 1.

Phase 3: Follow up questions. It is very important that we understand the intended meaning of all participants. We will follow up with participants via an email invitation to Qualtrics if we would like to clarify what you told us in phase 2, to double check with you that you agree with our interpretation of what you have said, and to give you the opportunity to comment on the preliminary findings of the study.

If you are interested in the study or have any questions about participating, please contact the primary researcher Michelle Wright (PhD Candidate) from the Social Cognition Lab at the University of Manitoba. This study is supervised by Dr. Janine Montgomery

Published on: Mar 10, 2021 at 09:33

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