Research Studies

AANE maintains this listing of current research for the community's information and possible participation. Researchers are invited to submit their studies.
Research studies will be removed from this page approximately two years after being posted, unless a different timeframe is specified. Researchers are strongly advised to contact us with new information about their studies periodically. To submit a new study or to make updates to a previously submitted study, use the link below.

Submit Research Study

Quality of life, Social support, Caregiver Burden, and Stigma of Caregivers for Children and Teens with ASD

04/16/2021
The prevalence of autism spectrum disorder has drastically increased within the last two decades. Depending on the severity of the condition, caregivers may be severely impacted by the diagnosis. While previous research demonstrates pervasive challenges for caregivers in terms of quality of life, caregiver burden, affiliate stigma, and informal... more

Self-compassion and emotion regulation

04/13/2021
Self-compassion is a healthy way of relating to ourselves. Self-compassion involves being warm and understanding toward ourselves when we suffer, fail or feel inadequate, rather than ignoring our pain or being too self-critical. Research has shown a strong relationship between self-compassion and mental health and wellbeing. However, no research... more

Leveraging Technology to Assess Caregiver Quality of Life

04/09/2021
Are you a primary caregiver of a child diagnosed with an Autism Spectrum Disorder? Are you between the ages of 20 and 60? Is your child between the ages of 3 and 10? Do you own a cellularly enabled device (e.g., Apple or Android)? You are being invited to participate in a research study titled Leveraging Technology to Assess Caregiver Stress... more

Parental Teaching of Perspective-Taking and Theory of Mind in Children of Color with Autism

04/09/2021
The Harris Parent-Child Interaction Lab is conducting a study on parental teaching of perspective-taking and theory of mind ability in children of color with autism. The researcher would like to recruit African American, Asian American, or Latino parents and their child with a verifiable diagnosis of Autism Spectrum Disorder. The child must be... more

Social Learning Among Autistic Young Adult Table-top Role Players: A Grounded Theory Study

04/07/2021
I am a doctoral candidate at Capella University. I am conducting a dissertation study, entitled, “Social Learning Among Autistic Young Adult Table-top Role Players: A Qualitative Study.” This study will examine how autistic youth describe making friendships and increasing social skills through participating in tabletop role-playing games such... more

Social and Nonsocial Decision Making in Autism

04/07/2021
The purpose of this research is to identify cognitive models of social and non-social decision making that may predict the treatment outcomes for people with autism. We will investigate social and non-social decision making in children, adolescents, and adults with and without autism on the behavioral and neural levels. We will use several... more

Examining the impact of service disruption and changes to quality of life during covid 19 on the mental health and…

04/05/2021
The aim of this study is to inform our understanding of the impact of service disruption during the Covid pandemic on the mental health and wellbeing for Autistic Young Adults. We also hope to identify what supports are most needed at this time. With the COVID-19 pandemic, those with existing vulnerabilities including Autistic young adults had to... more

Sleep quantity and quality for people with mucopolysaccharidosis and autism

03/30/2021
The study was constructed to answer questions about sleep quantity and sleep quality for people with mucopolysaccharidosis (MPS) and with autism. This project is intended to help delineate the sleep issues and their relationship to health problems, as well as compare sleep to people with autism. The study involves completion of an online... more

Experiences and impact of anxiety on activities and participation from the perspectives of autistic adults

03/30/2021
Anxiety and worry are commonly experienced by autistic adults. These experiences of anxiety and worry can impact your ability to participate and engage in life in the way you want to. We want to understand your experiences of anxiety and worry and how anxiety and worry impact your participation in day to day life. Can I... more

Treatment of Trauma in Young Adults with Autism Spectrum Disorder using EMDR Therapy

03/25/2021
Researchers at The Johnson Center are seeking adults 18 and older with autism to participate in a study. The purpose of the study is to evaluate whether EMDR therapy is effective in treating symptoms of traumatic or adverse experiences in adults with autism. What is required? * Eight weekly 1-hour EMDR sessions at The Johnson Center office *... more

The Relationship Among Quality of Life, Informal Social Support, Affiliate Stigma, and Caregiver Burden of Minority Caregivers of Children with…

03/19/2021
Based on current literature, no studies have assessed the associated and correlative relationships between affiliate stigma, social support, caregiver burden, and quality of life among minority caregivers of children with autism spectrum disorder in the U.S. The purpose of this study is to investigate and address this gap. The researchers... more

Yale Robots for Adults with ASD

03/15/2021
We’ve developed a robot to provide efficient and relevant training to improve users’ tolerance to interruptions. Your participation in this study involves responding to several types of interruptions initiated by our in-home social robot during a 2-hour window per day, for at least 7 days. We will be paying participants $15 per day of active... more

Why does my adolescent sometimes lash out?

03/15/2021
Adolescence and early adulthood can be a really difficult time, especially for those with autism. Researchers at the University of Edinburgh are studying why some adolescents report higher rates of aggression. We are looking for parents and primary caregivers of adolescents aged 11 to 21 years old (with or without a diagnosis of autism) to take... more

Parenting a child with Autism spectrum disorder; the impact of spirituality and support on parental burnout

03/15/2021
You are invited to take part in a research study that I am conducting as part of my Masters Research Project for the University of Derby. The study will be looking at the effects of spirituality, support and parenting a child with Autism Spectrum Disorder in relation to parental burnout. Participation in this study is only for the following... more

Digital Helper Research Study

03/15/2021
What is the Digital Helper Research Study About? A Digital Helper is an avatar or digital character, like you see in video games. Digital Helpers help people with daily activities. We are interested in learning from teens and young adults on the autism spectrum what a Digital Helper should look like, sound like and what it should be able to do so... more

Who Knows You Best

03/15/2021
*Online Paid Research Study* We are launching a study to examine if sibling reports capture the same phenomena as adult-self reports and parent reports to explore whether siblings shed a different light on individuals with autism spectrum disorder. With this information, we hope to gain a better understanding on how well individuals report on... more

Global Criminal Justice Survey

03/10/2021
An international team is working to explore issues and identify best practices around interactions between autistic individuals and criminal justice professionals. In order to learn more about interactions of autistic individuals with criminal justice professionals, we are releasing an anonymous (no information will be linked to you)... more

The Experience of Patient-Centered Care and Communication for Adults with Autism Spectrum Disorder

03/10/2021
We are looking for adults (age 20 and older) with an ASD diagnosis to tell us about their experiences in healthcare. who meet the inclusion criteria screened for in phase 1 will be emailed a link to 6 long-answer free-response questions. These questions will ask about your experiences such as what is it like communicating with doctors., how... more

Parents’ Experiences Raising a Child on the Autism Spectrum

03/03/2021
If you are a parent or primary caregiver of a child on the autism spectrum between the ages of 6 and 17 years old, you are invited to participate in a research study focused on your experience! Participation will take 20-30 minutes. After participating, you will have the option to be entered into a raffle with a 1 in 20 chance of winning a $25... more

Autism and Depression in Young Adults

03/03/2021
Autism and depression often occur together. However, not enough is known about this experience and how to best support autistic people who also have episodes of depression. This study is being done by Harper McKenzie and Eileen McBride from Emerson College, Boston. If you take part in the study, you will be asked to complete an anonymous... more

Sexuality and Relationship Research Study

03/03/2021
In our lab, we are currently studying a sexuality education program that developed specifically for teenagers with autism spectrum disorder. We are looking for participants between 13 to 17 years old, with a diagnosis of autism spectrum/Asperger’s syndrome to take our 18-week course sessions. Their caregivers/guardians will need to consent... more

Postsecondary Education Achievement and Employment Success in Autistic Adults

03/03/2021
We are learning about the experience of autistic adults in employment and post-high school (also called post-secondary or tertiary education) settings. We are reaching out to see if you’d be interested in participating in our research study. Study details: • Online survey takes approximately 30 minutes • Personal information will... more

Infant Social Motivation Study – Online

03/03/2021
The Marrus Lab at Washington University School of Medicine is recruiting infants/toddlers for the Social Motivation Project, a study of early childhood social development. The purpose of this study is to understand how social motivation, the human drive to attend to social information and engage in social interactions, is manifested in early... more

Sexuality and Relationship Research Study

02/19/2021
The aim of this study is to examine how the structure of the Tackling Teenage Training sexual education curriculum impacts satisfaction and outcomes (including knowledge, social connectedness, appropriate boundaries and sexual behaviors, social reciprocity). We will be providing free sexuality education programs for students. The class is... more

Autistic Adults’ Perspectives on Education and Intervention Services

02/19/2021
I am a graduate student at the University of California, Santa Barbara, and I, along with a team of autistic and non-autistic researchers, am working on a study regarding autistic individuals' perspectives on intervention/education. Often intervention and education for autistic children is designed and implemented without any input from... more

The Quality of Life of Older Adults on the Autism Spectrum

02/17/2021
The purpose of this study is to explore the experiences of older autistic adults (aged 50 years and older). The study asks first hand, "What are the social, emotional, mental, and physical quality of life experiences of autistic adults aged 50 years and older?" There are three parts of the study, a demographics survey, a quality of life... more

Factors that Impact Transition to Adulthood in Young Adults with Autism

02/17/2021
Researchers at Texas Woman's University Department of Occupational Therapy are conducting a survey to learn more about factors that impact transition to adulthood in young adults with autism. If you are a parent or caregiver of a young adult with Autism level I, Asperger’s Syndrome, or High Functioning Autism, ages 18 to 26 and are... more

Spectrum for Life Interconnected Surveys

02/16/2021
Principal Investigator: T. A. Meridian McDonald, PhD Description: You are invited to participant in online studies about topics that affect the lives of adults on the autism spectrum. These survey studies will help us better understand what affects outcomes for adults on the autism spectrum. To do this, we will ask you to complete surveys... more

Healthcare-based Evidence-driven Communication for Autism

02/16/2021
We are a group of high-school student researchers developing an app to alleviate some potential communication challenges for individuals and families affected by Autism Spectrum Disorder. We would like this app to reflect the needs of the Autism community. In order to create a tool that can help everyone, we’ve created a survey to gauge the... more

Brain and behavioral changes over time in young children with autism

02/16/2021
Do you have concerns about your child’s development, social and/or language skills that may be related to autism? The Child Mind Institute’s Autism Center, located in New York, NY, is currently recruiting participants for a NIMH-funded study on the relationship between brain development and behavior in young children. Participation in... more

Healthcare-based Evidence-driven Communication for Autism

02/10/2021
We are a group of high-school student researchers developing an app to alleviate some potential communication challenges for individuals and families affected by Autism Spectrum Disorder. We would like this app to reflect the needs of the Autism community. In order to create a tool that can help everyone, we’ve created a survey to gauge the... more

How satisfied are individuals with ASD when receiving care in office-based healthcare settings such as doctor’s offices, emergency departments, dentist…

02/09/2021
The purpose of this study is to examine the satisfaction level of adults with autism spectrum disorder (ASD) during their encounters in healthcare settings in order to learn how the individual’s care can be improved by facilities and physicians during treatment. Graduate students in the Master’s of Occupational Therapy Program at... more

Exploring autistic adults’ perspectives of their own behaviors and interests

02/09/2021
Researchers from Rutgers University are recruiting autistic adults for a research study to learn their perspectives on their interests and behaviors. Participants in the study will be asked to complete a set of online questionnaires. Some participants will then be invited to participate in a videoconference interview. In order to... more

The Role of Self-Determination and Perceived Parental Support in the Participation of Transition Planning Among Transition-Age Youth with Autism Spectrum…

02/09/2021
This study is for both transition age youth with ASD (including Asperger’s) and their parents and has been approved by Illinois Institute of Technology's IRB (Approval # IRB-2021-14) Researchers from the Department of Psychology at Illinois Institute of Technology are conducting an online research study to learn more about the role of... more

Nationwide App-based Mindfulness Intervention for Adults with Autism

02/08/2021
Adults with ASD often experience depression and anxiety symptoms which can affect quality of life. Participants will attend daily meditation sessions using the Ten Percent Happier Mobile Application for 10 minutes/day for 8 consecutive weeks. Our research aims: to assess the therapeutic potential of an app-delivered mindfulness meditation in... more

Stress reduction intervention in Phoenix, Arizona for adults with ASD

02/08/2021
Adults with ASD often experience depression and anxiety symptoms which can affect quality of life. Participants will attend 8 weekly sessions involving stress-reduction education and social support that have reduced depresssion in adults with ASD. Our research aims to understand brain functioning before and after stress-reduction classes to... more

Chinese American Parents’ Perspectives on ASD Education

02/08/2021
The study aims to investigate the attitudes and comments of Chinese American parents towards the cultural Sensitivity of the intervention methods and educational materials that their children with autism received. It also analyzes the experiences of Chinese American parents over stereotypes and stigma in Chinese culture related to... more

IEP Services for ASD Across Communities

02/08/2021
We are launching a study to examine the potential discrepancies in Individualized Education Programs (IEP) of students with Autism across school districts with populations of families with diverse cultural and socioeconomic backgrounds. With this information we hope to identify service patterns that are inconsistently offered and how COVID-19 has... more

Exploring the experiences of parents who have children with ASD transitioning to adulthood

02/08/2021
Abstract The focus of current research for children with autism spectrum disorder transitioning to adulthood addresses the negative outcomes in employment, postsecondary education, socialization, community integration, and financial effects from the parent perspective. Currently there is little known about the parent experiences of transitioning... more

Are parent’s motivational needs being met by the education system during COVID-19

02/01/2021
This survey intends to explore whether parents’ needs were being met within their children’s education, during COVID-19. How long will the online survey take to complete? Approximately 10 minutes Do I have to take part? This survey is voluntary and you can withdraw at any point, without giving a reason. This survey intends to explore... more

Development and Pilot Study of a sensory diet ios application for occupational therapists and caregivers of children with Autism

02/01/2021
Hello, My name is Jane Min and I am an occupational therapy doctorate student at the USAHS. I was hoping to reach out to see if I would be able to use your platform in search of caregivers/parents of children with ASD and occupational therapists who may be interested in testing my newly created app. Currently, I am working towards beta testing... more

Camouflaging and Quality of Life in Autistic Adults

02/01/2021
My name is Sophie Manevich and I am a fourth-year graduate student in La Salle University’s Clinical Psychology doctoral program. I am currently recruiting adults on the autism spectrum to participate in a research study which focuses on quality of life and social behaviors. Please consider distributing this to autistic adults who you work with,... more

Understanding Sexuality and Community Participation in Adults on the Autism Spectrum

02/01/2021
We are looking for LGBTQIA+ Autistic adults to participate in a research study on inclusion. Please complete a brief survey about yourself and participate in either an interview or focus group to answer questions about your identity and community participation. You can participate whenever/wherever is convenient for you and receive a $25 gift... more

Siblings FORWARD: Focusing on Relationships, Wellbeing, and Responsibilities aheaD.

02/01/2021
Researchers at Boston University are looking for adult siblings with a family member on the autism spectrum to provide feedback on a new program. The Siblings FORWARD program was designed to help siblings work with their family to plan for the future. Study Description: - One group of siblings will participate in the Siblings FORWARD program,... more

Young Adults with Autism and Social Media Use

01/22/2021
If you are an adult (18-40 years old) and diagnosed with autism, you are invited to complete an anonymous survey about the use of social media. The purpose of the study is to evaluate individual characteristics and features of social media platforms that support online engagement. website:... more

Usability of the Quality of Life for Children with Autism Spectrum Disorder Scale

01/22/2021
Researchers at Old Dominion University in Norfolk, Virginia and the University of South Carolina are conducting a study to examine the usability and measurement properties of the Quality of Life for Children with Autism Spectrum Disorder scale. They would like to invite parents or caregivers of children with Autism Spectrum Disorder to participate... more

Project CRUSH

01/19/2021
The purpose of the study is to learn what factors (if any) impact the ability of adults on the autism spectrum to gain and use knowledge about dating and sexual relationships. Our goal is to work with adults on the spectrum to develop a new knowledge- and skills-based training program to meet their specific sexual health and dating needs. It is... more

Decision making processes in Autism Spectrum Disorder

01/19/2021
The study goal is to examine decision-making processes in the neurotypical and neurodivergent population. The study poses no risk or harm. In this study, you will be asked to upload the certificate of your autism diagnosis. This will be followed by an experiment in which you’ll perform several decision-making tasks and complete some... more

Preferences for Person-First Language (PFL) and Identity-First Language (IFL) within the Autism Community

01/19/2021
Research in the Speech-Language Pathology department of Midwestern University is conducting a survey for individuals in the autism community. Who can participate: Students and adults (ages 14+) with autism and parents or caregivers of autistic individuals. What will you do: Complete a 25-question online survey that will ask questions... more

Leucovorin for the Treatment of Language Impairment in Children with Autism Spectrum Disorder

01/19/2021
The Massachusetts General Hospital is conducting a study investigating the safety and effectiveness of a medication called leucovorin to improve language in children with autism spectrum disorders (ASD). Participants must be between ages 5 and 12, with an autism spectrum disorder. This study will include several visits to the MGH Lurie Center.... more

Eagles Autism Challenge: Learning about Employment Supports for Young Adults with ASD

01/13/2021
Drexel Autism Institute is seeking young adults 18+ who are in their last year of high school (graduating Spring 2021) or who are experiencing their first year post high school. We’re also looking to recruit caregivers and providers working with young adults to participate in the study. For more information, check out the flyer. If you are a... more

Stress in Parents of Children with Autism Spectrum Disorder

01/13/2021
The purpose of this study is to investigate why some parents of children with ASD are more stressed than others despite experiencing similar ASD-related stressors. The findings of this project could lead to the proposal of targeted interventions to support families and facilitate family functioning. If you are a parent of a child with Autism... more

Protective Factors of Gender Diverse Autistic Youth

01/11/2021
Researchers at The University of Massachusetts Amherst are working on a research study to learn about gender diverse autistic youth (ages 13 through 17), and the potential protective factors associated with their psychological well-being and life satisfaction. The factors of interest include school, community, family, peer, personal wellness and... more

Investigation of Neuroinflammation in Autism using MR-PET

01/11/2021
The Massachusetts General Hospital is conducting a research study investigating the structure and function of the brain of adults with and without autism spectrum disorders using MR-PET scans. Patients must be 18-40 years old, with or without an autism spectrum disorder. There are 3+ visits; participants are compensated for their... more

Exploring autistic adults’ perspectives of their own behaviors and interests.

12/14/2020
Researchers from Rutgers University are recruiting autistic adults for a research study to learn their perspectives on their interests and behaviors. Participants in the study will be asked to complete a set of online questionnaires. Some participants will then be invited to participate in a videoconference interview. Website:... more

Solution Talk with Parents of Children with Autism

12/14/2020
We are researching ways to support parents of children with with Autism. The purpose of this study is to support parents during the pandemic and provide a strength based and solution focused group for them to enhance their coping strategies and reduce their stress. We are hoping to work with parents to build solutions for themselves and their... more

Making a survey about personality strengths

12/11/2020
We are doing interviews with adults with intellectual and developmental disabilities so we can learn how to make a survey easy to use for people with disabilities. This survey can help doctors, therapists, and other people who work in healthcare learn about your strengths. We want to know: Is the survey easy to use? Do you like taking... more

Assessing Views on Genetic Testing in Autism

12/11/2020
We are researchers at Columbia University Irving Medical Center, and would like to invite people with autism to participate in a confidential interview as part of a research study. If you decide to participate, we would ask about your views on autism and its causes. as well as on your daily life experiences and plans for the future. The interview... more

Disclosure and workplace accommodations for young adults with intellectual/developmental disabilities and co-occurring mental health conditions

12/04/2020
Individuals with intellectual/developmental disabilities (IDD) are significantly underemployed, with recent estimates of community-based employment at 20.2%. Approximately one-third of people with IDD also have a co-occurring mental health condition. The population of young adults with IDD and co-occurring mental health conditions (YA with IDD-MH)... more

Assessing the Impact of Textural Selectivity and Tactile Sensitivity on children with and without autism

11/30/2020
Hi there! My name is Amy Andes, I am a PhD student at Ohio State studying food science, but specifically I study food texture aversions in children with autism. I have an opportunity for children with autism to be in my paid research study. It is for children aged 10-15 with a diagnosis of autism. One requirement is that they are able to talk... more

Access to Autism Services via IEP

11/30/2020
We are launching a study to examine the potential discrepancies in Individualized Education Programs (IEP) of students with autism across school districts with populations of families with diverse cultural and socioeconomic backgrounds. With this information we hope to identify service patterns that are inconsistently offered and how COVID-19 has... more

An Exploration of Guardianship: A Qualitative Study

11/24/2020
My name is Rachel Minkoff, LMSW and I am a doctoral candidate at Yeshiva University, Wurzweiler School of Social Work. I am requesting your participation in a study about the motivations for selecting legally defined guardianship or its alternatives and the observed mental health characteristics of the individual thereafter. The purpose of the... more

Identifying socially valid content and intervention features for sexuality and sexual health education for young adults with intellectual/developmental disabilities

11/24/2020
We are doing a survey to learn about how to make sexual health education fun, comfortable, and helpful for young adults with intellectual and developmental disabilities, including autism. We are recruiting teachers and other people who work in schools, family members, and young adults with disabilities to take this survey. Here are links for... more

Transcending the Transition Plan

11/24/2020
Hello! My name is Andrea Benatar. I am a rising junior at Carnegie Mellon University studying design, and I am currently conducting research on improving transition options and access to necessary resources for young adults with autism once aged out of high school. With so many students who have developmental disabilities placed on eternal... more

Differences in interpersonal reactivity

11/20/2020
My name is Maciej Matejko, I am an MA student of English linguistics at the Jagiellonian University in Kraków, Poland. For my MA project, I conduct a study in which I investigate differences in how neurotypical and autistic people feel and think in different situations. Both autistic and non-autistic people over the age of 18 are invited to fill... more

Autistic Adults’ Perspectives on Education and Intervention Services

11/16/2020
My research team (which consists of a group of both autistic and neurotypical graduate students) is looking for autistic adults to participate in a survey study regarding their perspectives on education/intervention. Here are some details: Oftentimes, intervention and education for autistic children is designed and implemented without any... more

Responding to Art

11/16/2020
My name is Ellie Grossman and I am a second-year student in the Developmental Psychology program at the CUNY Grad Center and an adjunct instructor at Brooklyn College. Right now, I am conducting a research project to look at how college students with autism respond to art. The study involves looking at a series of paintings and answering questions... more

Racial and Age Disparities in Autism Service and Support

11/10/2020
PARTICIPANTS NEEDED for a study on racial and age disparities in autism services and social support! If you are a caregiver of an adolescent or adult on the autism spectrum (ages 16-30) who has lived with you for at least the past 12 months, please consider completing the brief (about 10 min) SURVEY linked below , and feel free to share with... more

Improving employment Outcomes for Young Adults on the Autism Spectrum

11/03/2020
Hello, my name is Bari Eisenhauer and I am a doctoral student in the School of Communication Disorders and Deafness at Kean University. I am conducting a study to explore the relationship between social skills and vocational programming in high school and employment after graduation for young adults with an autism diagnosis. I am inviting... more

Parent-Led Cognitive Behavioral Teletherapy For Anxiety in Youth with ASD

11/03/2020
Are you the parent of a child aged 7 to 13 with anxiety and Autism Spectrum Disorder in Texas? Join a free treatment study! What is this study about? Baylor College of Medicine is conducting a research study that provides free treatment for anxiety designed to fit the needs of children with autism spectrum disorder in Texas (ages 7-13 years... more

Evaluation of a brief, telehealth intervention to support emotional distress of autistic adults during COV

10/07/2020
This study is to test a new, brief telehealth intervention aimed at helping adults cope during times of stress. The study length is approximately 12 weeks, where participants will complete questionnaires about their social and emotional functioning, create an Emotional Support Plan (ESP), and engage in weekly check-in meetings for 8 weeks with a... more

The Effects of COVID 19 on the cardiovascular (heart health) health of children with ASD

10/06/2020
The questionnaire entitle: effect of Covid 19 on the cardiovascular health of children with ASD has been approved by the ethics Committee at I.T Carlow, Ireland. The questionnaire will be filled out by parents of children with ASD and will consist of questions asking relating to them and their child. Within the questionnaire they will be asked... more

Understanding experiences of work and unemployment for individuals with Autistic Spectrum

10/01/2020
My name is Iona Mason, and I am a Geography student from the School of Geographical and Earth Sciences at the University of Glasgow conducting a study for an Honours Geography Degree. The study examines the experiences of the workplace/ being unemployed of people with autism. The main aims and objectives are: • To find out if employment... more

Exploring autistic adults’ perspectives of their own behaviors and interests.

09/28/2020
Researchers from Rutgers University are recruiting autistic adults for a research study to learn their perspectives on their interests and behaviors. Participants in the study will be asked to complete a set of online questionnaires. Some participants will then be invited to participate in a videoconference interview. website:... more

Age, Racial and Ethnic Disparities in Autism Services and Support

09/28/2020
PARTICIPANTS NEEDED for a study on racial and age disparities in autism services and social support! If you are a caregiver of an adolescent or adult on the autism spectrum who has lived with you for at least the past 12 months, please consider completing this brief (10 min) SURVEY (linked below) , and feel free to share with other families who... more

Study Seeking Participants Ages 14-32

09/23/2020
Participants needed for our research studies on brain function at Massachusetts General Hospital – Charlestown Campus! The studies involve behavioral assessments, measurements of brain waves using MEG/EEG, and pictures of the brain using MRI. We are currently recruiting adolescents/adults with Autism Spectrum Disorders, and typically... more

Supporting Mothers of Children with Autism

09/18/2020
The goal of the Supporting Mothers of Children with Autism Study is to better understand the experiences of single, divorced mothers raising a child with autism spectrum disorder. For this study, we will email you a link to some questionnaires and that’s it! Upon completion of the study, you will receive a $10 gift card. If you think you may be... more

Siblings of Children with Autism Spectrum Disorder

09/18/2020
The goal of the Siblings of Children with Autism Spectrum Disorder study is to examine the experiences of the neurotypical siblings of children with autism spectrum disorder. In order to participate, you must be the father of a neurotypical child between 8-16 years old and a child diagnosed with autism between 8-16 years old. This study involves... more

Well-Being of Mothers of Children with Autism

09/18/2020
The goal of the Well-Being of Mothers of Children with Autism study is to examine the associative links between personality and parenting. In order to participate, you must be a mother of a child diagnosed with ASD. Your child must be between the ages of 4-17 years old. This study involves completing a series of online questionnaires about... more

Employment Decisions in Mothers of Children with Autism Spectrum Disorder

09/18/2020
The goal of Supporting Mothers of Children with Autism is to examine the experiences of mothers of children with autism spectrum disorder (ASD) who have either decided to leave or remain in the workforce after their child's autism diagnosis. In order to participate, you must be a married mother of a child diagnosed with ASD. Your child must be... more

Coronavirus and Autism Behavioral Study (CABS)

09/14/2020
Is your child on the autism spectrum? You can play an important role in research by participating in a free, voluntary, and confidential study evaluating the impact of the coronavirus (COVID-19) pandemic on children with autism and their families! Objective: Researchers at The Ohio State University are seeking to understand the factors that... more

Ecological momentary assessment of leisure activity participation among adults with autism spectrum disorder

09/09/2020
Leisure participation is key in physical and mental wellbeing, social inclusion, independence, self-worth, and quality of life. Researchers at the University of Minnesota and Temple University are recruiting adults with autism who live alone or independently with roommate(s). This study examines the types and frequency of leisure activities that... more

Research interview for 16-20 yr olds on the spectrum, $40 gift card

09/04/2020
Hello! My name is Emily Rothman and I am a researcher at the Boston University School of Public Health. Our team has new funding from the National Institutes of Health (NIH) to conduct an interview study with 16-20 year old youth on the spectrum. The study does not require any in-person visits, it is entirely via Zoom or telephone. Eligible... more

Being Black and on the Spectrum: Navigating the Educational System

09/03/2020
We are seeking participants for a study! This study will look at how Autism may uniquely affect the schooling of Black students. You may be eligible to participate in this study. This study will involve a survey and interview. The survey will take no more than 15 minutes. In the survey, you will provide demographic information. After the survey,... more

Eagles Autism Challenge: Learning about Employment Supports for Young Adults with ASD

08/25/2020
The Drexel Autism Institute is seeking young adults 18+ who are getting ready to leave high school this year or is experiencing their first year post high school. They are also looking for these young adults’ caregivers and their providers to participate in this study. For more information, check out the flyer. If you’re interested fill out... more

SPARK

08/25/2020
Participate in autism research from home!​ If you or your child has a professional diagnosis of autism, Boston Children’s Hospital invites you to learn more about SPARK, an online research study sponsored by the Simons Foundation Autism Research Initiative. The mission of SPARK is clear: speed up research and advance understanding of autism... more

Autism, Workplace Design, and Well-being Study

08/12/2020
This online survey of approximately 25-35 minutes investigates the relationship between various office environment characteristics and autistic employees’ attitudes and well-being. This will aid in identifying the workplace attributes that need improvement in order to create accommodating workplaces. To qualify, participants must be autistic... more

Person-Centered Planning and Social Inclusion for Adults with Intellectual and Developmental Disabilities

08/12/2020
Hello, my name is Katie Dempsey and I am a student in the Human Behavior department at National University (NU). I am conducting a study to identify the relationship between person-centered planning and social inclusion. I am asking adults over the age of 18 who provide care to adults with intellectual and developmental disabilities to complete a... more

Autism and Parenting

08/12/2020
My name is Marie Carmaudely L. Galliotte, I am a doctoral student at William James College, (WJC) formerly Massachusetts School of Professional Psychology (MSPP). I am conducting a study as part of WJC’s doctoral project requirement toward completion of the Clinical Psychology program. I am looking to recruit parents of children with a diagnosis... more

What Is The Relationship Between Parents / Guardians’ Recollections of Early Childhood Experiences and Expectations for Their Children with Autism?

08/11/2020
This research is being conducted by Robert Saxner, M.A., at William James College in partial fulfillment of a doctoral degree in clinical psychology. This study examines the relationship between parents / guardians’ recollections of childhood experiences and their expectations for their children with autism. Participants in this study have... more

Caregiver Interview Study – Understanding how Sensory Sensitivities Impact the Transition to Adulthood

08/06/2020
The Center for Autism Research Excellence (CARE) at Boston University is conducting a short interview study to better understand how caregivers of individuals with ASD conceptualize their children’s transition to adulthood. We are particularly curious about how their children’s sensory sensitives and interests may impact their children's... more

The Experience of Patient-Centered Care and Communication for Adults with Autism Spectrum Disorder

08/06/2020
We are looking for adults (age 20 and older) with an ASD diagnosis to tell us about their experiences in healthcare. who meet the inclusion criteria screened for in phase 1 will be emailed a link to 6 long-answer free-response questions. These questions will ask about your experiences such as what is it like communicating with doctors., how your... more

Association between motor and language skills in children with autism spectrum diagnoses

08/06/2020
The School of Public Health at Indiana University Bloomington seeks research participants for a study examining the relationship between motor/movement and language skills in children with autism spectrum diagnoses (ASD). We are looking for parents/caregivers of a child who: (1) has been diagnosed with ASD by a medical professional, (2) are aged... more

SPARK

08/04/2020
Have you heard about SPARK? SPARK is already the largest autism research study, but we are just getting started! What is SPARK? We are a growing community of individuals, families, and researchers on a mission to speed up the understanding of autism. Our aims are to: • Collect DNA and information through surveys from 50,000 people with... more

The Experience of Patient -Centered Care and Communication for Adults with Autism Spectrum Disorder

08/04/2020
We are looking for adults (age 20 and older) with an ASD diagnosis to tell us about their experiences in healthcare. who meet the inclusion criteria screened for in phase 1 will be emailed a link to 6 long-answer free-response questions. These questions will ask about your experiences such as what is it like communicating with doctors, how your... more

Next Generation Autism Technology – Design Activity For Autistic Adults with $75 Thank You

08/04/2020
Conversations are important because they help people get to know each other better, talk about interests, and work things out. Our research explores ways technology could be used by autistic adults to help make conversation go smoother and feel more comfortable. Researchers at the University of Washington are recruiting autistic adults (aged 18... more

Design of Next Generation Autism Technology by Adults to Collaborate and Co-Create Experiences

08/03/2020
Researchers at the University of Washington are conducting a co-design study called the Next Generation Autism Technology study: https://vsrs.ischool.uw.edu/projects/autism/.  The purpose of this study is to understand the ways that autistic adults collaborate with other people, and how people co-create sensory and emotional experiences. We... more

Humming v. Music Listening: Exploration of a neuro-integrative application for those with ASD

07/29/2020
What is this project about? To find embodied physiological differences between humming and music-listening in those diagnosed with ASD and those without ASD. There will be three different age groups tested: Ages 7-10, 13-20, and adults. How you will participate in the study: You will participate by watching a short video and either humming or... more

Survey on Young Adults with Autism (18+) and Emotion Regulation

07/24/2020
We are conducting a research project to understand the challenges that parents and caregivers face when helping young adults with Autism to regulate their emotions. The questionnaire is available online Responses are anonymous, and the completion of the questionnaire takes around 15 minutes. Your support is highly appreciated. If you... more

Survey for Parents of School Age Children/Teens on Extracurricular Activities

07/22/2020
We are looking at a long-term and sustainable programs for post-COVID, knowing very well that our normal has been changed and we will most likely have a new normal.  This parent/guardian survey aims to gather information about extra-curricular activities available to school-age children with Aspergers or on the autism spectrum. We hope to use the... more

Survey for Service Providers on Programs for People of Color with Autism

07/22/2020
We are looking at a long-term and sustainable programs for post-COVID, knowing very well that our normal has been changed and we will most likely have a new normal. This form aims to gather information about services provided to those with autism broadly, and those who identify as people of color with autism. We hope to use this information to... more

Survey for Parents of Children / Teens / Young Adults (aged 6-25) on the Development of Gender Identity

07/22/2020
My name is Dr. Andrew Adesman, and I am a developmental pediatrician at Cohen Children's Medical Center in New York. I am writing to ask for your assistance with an important research study related to the development of gender identity in children and adolescents with Autism Spectrum Disorder. In order to examine gender identity development in... more

Gender-Diverse Expressions and Identities among Youth with ASD

07/22/2020
We are investigating how gender identity develops in individuals with Autism Spectrum Disorder using a short anonymous questionnaire for parents of children with ASD. We hope that our study will generate findings which will be useful for better assisting individuals with ASD who may have gender-related concerns. Additionally, our study will... more

Focusing on Fitness: Exploring Motivation and Barriers to Physical Activity in ASD to

07/13/2020
We are recruiting autistic adults for a research study on physical activity. In order to eligible, participants must be older than 18, able to consent for themselves, and able to participate in a 30-45 minute Zoom conversation about their experiences with physical activity. Participants will receive a $20 Amazon gift card as compensation.... more

Barriers when Seeking Services for Autism

07/10/2020
Parents struggle to find resources for their children diagnosed with autism. By participating in my survey, it will help us understand parent’s experiences in search of resources for their children. Alliant International University's Institutional Review Board has approved this study and it is completely confidential. Who qualifies? -Parents... more

Help-Seeking Behaviour Towards Mental Health and the Relationship with Self-Compassion in Parents of Children with Autism

07/02/2020
The purpose of this study is to investigate whether there is a relationship between help seeking behaviour for mental health and self-compassion in parents of children with autism. The term ‘parent’ refers to natural mother/father, stepmother/stepfather, or foster mother/father Eligibility: You are eligible to take part in this study if... more

An exploration of factors affecting eating behaviours and BMI

07/02/2020
The research aims to explore the association among individual characteristics, eating behaviours and body mass index (BMI). The number of adults in the UK that fall into an unhealthy weight range – underweight, overweight, obese – continues to rise significantly, therefore research that investigates the factors and potential barriers to eating... more

Roleplaying Games Narrative Studies

06/30/2020
Have you played a roleplaying game (Dungeons and Dragons, Pathfinder, etc.) within the last year, either in-person or online? Do you have a story or two to tell about your in-game adventures? Are you 18 years or older? If you are interested, please contact David Schena (david_schena@uml.edu) in order to sign up. All persons who meet the above... more

Consumer Research for Clothing Designed For Children with ASD and SPD

06/26/2020
I recently graduated from Cornell University with a major in Fashion Design and an independent focus in adaptive clothing for children with Autism Spectrum Disorder and Sensory Processing Disorder. I am now seeking to gain further insight from the autism community about the needs not yet being addressed in the apparel market as I work to launch a... more

Effects of camouflaging in Autistic individuals

06/26/2020
Research has shown that some autistic people use techniques to hide their autism from other people. I want to learn more about the effects of this, so that better support can be provided for those individuals. This study aims to find out how autistic people use these techniques and whether it has an effect on their mental health and takes roughly... more

Healthy Relationships on the Spectrum

06/25/2020
Boston University is seeking autistic young adults ages 16-22 years old for participation in a new NIH-funded research study on healthy relationships. The study is an interview study. Eligible participants will spend approximately 30 min in a telephone (or Zoom, or texting/chatting) interview, and will complete a brief online survey. Participants... more

Parents’ Experiences with Challenging Behavior

06/24/2020
We want to gather information about what parents think about their children's behavior and how they respond to it. We are recruiting caregivers to participate in a study about their experiences with their young child’s behavior. There are three parts to the study: (1) completing an online questionnaire, (2) participating in an individual 30-40... more

Humming v. Music-Listening: Exploration of a neuro-integrative application for those with ASD

06/18/2020
We have known since the beginning of time that music is healing. Theoretically, music frequencies can re-tune the brain, even forging new connections. This study explores the differences in embodiment of musical vibrations, comparing this with humming (music made from the inside-out)--and effects to feelings of well-being in those with and without... more

Neurodiversity & Participation in the Planning and Policy Process

06/17/2020
Online Survey The research I am doing is centered on the socio-environmental aspects of autism. City and regional planners are responsible for designing the environment and creating policies that regulate the public realm and ways of coexistence in it. My hypothesis for the research is that planners are willing to create inclusive public... more

The Intricacies of Dating with High Functioning Autism

06/05/2020
This research study sought to answer two research questions: (a) What are the perspectives of individuals with HFA as they navigate both the formation of and commitment to romantic relationships? (b) How do my experiences as therapists working with individuals with Autism spectrum disorder (ASD) influence their perception of the difficulties... more

Wellbeing at work

06/04/2020
This is an online survey about wellbeing at work. We are interested to find out what is important for the wellbeing of employees with autism/asperger's in order to inform employers of how to best support these employees to thrive! We would like to hear from you if you have current or previous work experience (paid or voluntary). The survey is... more

What are the challenges/benefits or raisin or being an individual on the Autism Spectrum

06/01/2020
This short, three part survey will investigate the potential benefits and the challenges of raising or being a bilingual individual on the Autism Spectrum. Participants need to be parents of or bilingual individuals on the Autism Spectrum and need to be 16 years or older. More information as well as the study itself can be found on the following... more

Experiences in Person-Centered Transition Planning for Youth with Autism Spectrum Disorders

05/07/2020
We are inviting interested participants who participated in transition planning for youth with autism spectrum disorders (ASD). The study aims to investigate opportunities for technology to better assist person-centered transition planning for youth with autism. You may be eligible to participate in our study if you are a youth with ASD, a parent... more

Food and Eating Behaviors of Children with ASD in Response to COVID-19 Survey

05/05/2020
We at the Purdue Autism Research Center are studying how children with ASD are responding to the COVID-19 outbreak as it relates to food and eating behaviors. The survey will take approximately 15-20 minutes, and participants will be given the opportunity to enter a drawing for one of ten $20 Amazon gift cards. By taking part in this study, your... more

Pronoun use in preschoolers with autism

05/05/2020
Researchers at New York University are conducting a study funded by the National Institutes of Health to study pronoun use in children with ASD under the age of 6 years. You'll complete a two-part survey about your child's pronoun use and receive a $15 Amazon gift card. To see if you qualify: https://tinyurl.com/LEARNHowKidsTalk email:... more

Survey about Serious Games use in psychotherapy in the US

05/04/2020
Hello AANE, I am a PhD student from Germany (University Kassel) under the supervision of Professor Christiane Eichenberg from the Sigmund Freud University in Austria.I am doing an international study of mental health clinicians’ and patients’ attitudes towards the use of Serious Games in psychotherapy in cooperation with the University of... more

Perception of Childhood Bullying in Adults with Autistic Spectrum Disorders

04/22/2020
This is a dissertation project that currently undertaken by Masters students in the University of York in the UK. The aim of this project is to assess perception of bullying in childhood in adults with ASD through asking them to recall childhood experiences in relation to theory of mind, social cognition and emotional perception measures. You... more

Factors Impacting Marital Satisfaction in Parents of Children with Autism

04/17/2020
We are exploring factors that contribute to marital satisfaction in parents of children with autism. We would greatly appreciate it if you could fill out our survey, for a chance to win a $50 Amazon gift card and help us learn more about effective interventions for parents of children with autism. To fill out the survey, participants must: -Be... more