Research Studies

AANE maintains this listing of current research for the community's information and possible participation. Researchers are invited to submit their studies.
Research studies will be removed from this page approximately two years after being posted, unless a different timeframe is specified. Researchers are strongly advised to contact us with new information about their studies periodically. To submit a new study or to make updates to a previously submitted study, use the link below.

Submit Research Study

Respite Care for Families of Children with Disabilities

Researchers at the University of Massachusetts Amherst, in partnership with Family Empowerment (a division of Pathlight), are seeking parents of children, adolescents and adults with intellectual and developmental disabilities to complete a survey on use of respite care and related services. Previous use of respite care is not required for... more

A Model of Parental Involvement in the Music Education of Students with Special Education Needs

I am a music teacher/Ph.D. candidate at the University of Miami and I am doing research on the topic of parent involvement in the music education of students with special education needs. The purpose of this study is to examine what influences the development of effective relationships between schools, music teachers, and parents. If your child... more

Student Voices – Anonymous Survey for US High School Completers with ASD or LD

This survey is for individuals with autism spectrum disorder (ASD) or a learning disability (LD) who completed high school in the United States. Please complete this on-line survey to participate in a project that helps to create guides for current high school students, teachers, and parents to make the school experience feel more successful for... more

The aV1ation Study

Website: The Translational Medicine Program at the Center for Autism and the Developing Brain is recruiting individuals with autism from 5 – 17 years of age to participate in our study called aV1ation. The purpose of this study is to test... more

Mealtime Experiences Study/Food Selectivity in Transition-Age Youth with ASD Research

The Mealtime Experiences research study is a new project at the E.K. Shriver Center at UMass Medical School. The purpose of the study is to learn directly from youth (18-23 yrs.) with Autism Spectrum Disorder (Autism, Asperger’s, or PDD-NOS) who dislike a lot of foods or eat fewer foods than most people their age and whether their food... more

Student Voices -for upper High School students

For those in 11th & 12th grade: We are looking for current high school students with Autism Spectrum Disorder (ASD) or Learning Disabilities (LD) to participate in a project that helps to create guides for high school students, teachers, and parents to make the school experience feel more successful for those with ASD or LD. Focus groups... more

Student Voices -out of high school 1-3 years

For Those Out of High School 1-3 Years: We are looking for recent high school graduates with Autism Spectrum Disorder (ASD) or Learning Disabilities (LD) to participate in a project that helps to create guides for current high school students, teachers, and parents to make the school experience feel more successful for those with ASD or... more

Development and Refinement of a Caregiver-Completed Quality of Life Measure

Parents or primary caregivers of non-communicative children with autism are needed for this study, and will be requested to complete the packet given via the provided URL. The study consists of several measures consisting of mostly multiple-choice responses related to a child's quality of life, as well as related areas of interest such as familial... more

Simons Foundation Powering Autism Research for Knowledge

The mission of SPARK — an online research partnership involving 50,000 individuals with autism and their families — is simple. We want to speed up research and advance understanding of autism. Help us spark better futures for all individuals and families affected by autism. SPARK for Autism Research Study, Boston Children’s... more

Transition Outcomes of Students with Autism: Learning to Manage Daily Responsibilities

Website: Boston University is now recruiting Massachusetts parents and their high school students with ASD to participate in an 18-month longitudinal study on the post-school outcomes of students with ASD. We are looking for students with ASD who are in their last year of high school and who will graduate with a... more

Hazard Perception Training in Young Drivers with Autism Spectrum Disorder

Sometimes new drivers, including teens with high-functioning Autism Spectrum Disorder (HFASD), have a hard time visually detecting critical items and anticipating a needed response to objects and other traffic indicators of a potentially hazardous situation. These critical items include traffic signs such as speed limit, stop and yield signs, as... more

Experiences of Attempting to Get an Autism Diagnosis as an Adult

I am looking for participants who were not diagnosed with autism as children who then attempted to get a diagnosis at the age of 18 or older, regardless of whether or not they were successful in getting this diagnosis. My study only involves answering a questionnaire. I am interested in what struggles autistic people have faced in attempting to... more

The Other Side of the Rainbow

Dear women, Are you/were you in a romantic relationship with a man for at least one year? Is / was your partner/spouse on the Autism Spectrum? (Asperger's Syndrome)? If the answer to either of these questions is yes, and if you are at least 18 years old, you are invited to take part in a study that aims to question whether a romantic... more

Child Characteristics and Parent Factors in Children with ASD and/or ADHD: Disruptive Behaviors, Internalizing Symptoms, Parental Distress, and Parenting Practices

The study will examine disruptive behavior problems, internalizing symptoms, parental distress, and parenting practices in children with autism spectrum disorder (ASD), attention-deficit/hyperactivity disorder (ADHD), ASD+ADHD, and typically-developing (TD) children. Specifically, the proposed study will examine how levels of child disruptive... more

The Influence of Coparenting Support on Fathers’ Involvement with their Children with Autism

Attention fathers of children with autism aged 4 to 11 years! Share your opinions with researchers at the University of Windsor in an online survey about your parenting experiences. It takes about 30 minutes. You will be offered a $5 Donation gift card that can be redeemed as a donation to thousands of charities across Canada, including over... more

Can your active child help scientists understand autism?

Researchers at MIT and Northeastern University are studying how children interact with moving objects. Using fun activities like sports and video games, we hope to learn about cognitive and motor processes that may be different in autism. Who can participate? Children 7-12 years old can participate. Children with or without a diagnosis of... more

Decision Making in Autism Spectrum Disorder

Dr. John Knutsen at MassGeneral Hospital for Children is leading a study to help improve the care for children with ASD. The goal of our project is to identify ways to improve and make easier communication between parents of young children diagnosed within the past two years with autism spectrum disorder (ASD) and their child’s pediatrician and... more

Sidekicks – Autism Technology Focus Group

Sidekicks is a Boston-based technology start-up that is creating new products to support autistic individuals and their care teams. We are currently recruiting autistic individuals, autism parents, special educators, and professionals to participate in a focus group. Time Commitment: 60 minutes Location: 25 Mt Auburn St. Suite 100. Cambridge,... more

Parent Treatment Choice

We are currently examining what autism treatments teachers/parents have seen implemented, find effective, and thoughts about the treatment effectiveness. We are using a survey to inquire about those treatments. The number of questions will depend upon the participant's experience with different autism treatments. Teacher... more

Engaging Siblings of Adults with Autism in Future Planning

Boston University is doing a research study to develop a new program to increase siblings’ involvement in future planning for their brother/sister with autism spectrum disorder. We are looking for siblings, service providers, and  adults with autism for this study. If you participate, you will either participate  in a focus group or a... more

Novel Language Intervention Study (ages 5-12)

Website: We are testing the effectiveness of two speech interventions designed to help minimally verbal children with ASD learn to produce speech sounds, words, and simple phrases. Using noninvasive methods to record brain activity, we are seeking to identify brain ‘markers’ that could (1) help predict the kinds... more

Brain Systems for Language

Our primary mission is to advance scientific knowledge about language and social communication in people with ASD. This study focuses on adolescents aged 8-21 using behavioral, brain, and cognitive measures. The goal is to understand the range of language abilities, particularly the brain systems that may explain why people with ASD have... more

Sidekicks – Technology Usability Study

Sidekicks is a Boston-based technology start-up that is building an online platform to help the autism community. Founded by Ron Suskind, best-selling author of Life, Animated, Sidekicks taps into kids' special interests to help them practice communicating. We are looking for parents and their spectrum kids (age 6-18) to help us test some new... more

Understanding the Sexuality of Adults with High-Functioning Autism Spectrum Disorder

Do You Have Autism Spectrum Disorder (High-Functioning Autism, Asperger’s Disorder, or PDD-NOS)? Are your cognitive abilities within the low average to above average range? Would you be interested in learning more about yourself and your sexuality? If so and you are over 21, we would like you to participate in a research study being... more

TMS Investigations of Neuroplasticity in ASD

The main purpose of this study is to investigate brain plasticity in individuals with Autism Spectrum Disorder (ASD). Research suggests that during development the brains of individuals with ASD may change in response to their experiences differently than the brains of those without it. We want to understand why and how this difference may... more

Neurodiverse Couples Survey

A survey to help AANE better understand the unique needs of neurodiverse couples NEURODIVERSE COUPLES, WE NEED YOU TO TAKE OUR SURVEY! Neurology matters and so does your feedback. If you are currently in a neurodiverse relationship, or if you have been in one in the past, please help AANE by taking the survey and sharing your opinions and... more

Quality of life of school-aged children with autism spectrum disorder: Factors that predict parents’ perspective

I am a researcher involved in a project on quality of life for parents and their children with ASD. The study is for parents of children with ASD aged 8-11 – looking at factors related to children’s quality of life. The link to the survey is here: We are on twitter: @autism_unb and... more

BE YOURSELF research study

Brain Empowerment: Youth-Oriented Unconstrained Reality for Social Engagement and Lifeskills Formation Brain Power, creator of the world's first wearable educational system for people with autism, is currently enrolling children and adults on the autism spectrum for a research study testing tolerability of Google Glass and Brain Power software... more

Understanding Autism Service Preferences

Invitation to participate in a research study on autism service preferences We would like to invite you to participate in a research study about your thoughts and feelings about autism services. We are looking for people with autism and their families to take an online survey about how you think and feel about different services you may have... more

PALS Program Design Feedback: Pilot Study

Dr. Denise Davidson, Ph.D., of Loyola University Chicago is running a study assessing the efficacy of a social support program (PALS) she designed on successful transition to college in students with ASD. She is interested in exploring how the PALS program affects four individual characteristics (social and emotional functioning, mental health... more

Call for Submissions: Personal Essays of Everyday Life

Through a grant from the Western Mass Recovery Learning Community, I am publishing a collection of personal essays depicting everyday life from individuals with Autism, ADD, Down Syndrome, OCD, and other neurological idiosyncrasies. I wish to extend a call for submissions to the Fighting for Autism Community. Right now, I am looking for stories... more

Failure to Launch: Perceptions of Young Adults With ASD and Their Parents Regarding Meaningful Employment and Independent Living

You are invited to participate in a research paper titled “Failure to Launch” designed to explore the perceptions of young adults with Asperger’s Disorder (AD) or High Functioning Autism (HFA), and their parents, regarding meaningful employment and independent living after high school or post- secondary education. This study is being... more

Kasey’s Workplace Questionnaire

Hi, My name is Kasey McClelland and I am the mother of an Aspie 8 year old. I am also enrolled at Texas State University and I am writing a research paper of Autism in the workplace; however I reside in a rural community and am looking to send my anonymous and brief (less than 5 minutes) questionnaire to 30-50 autistic or Asperger's... more

Asperger Syndrome: What parents can teach us about success and challenges

I am Wendy Handler, MBA, DBA. I am working on a research project about the experiences of parents of children (elementary school to mid 20’s) with Aspergers. My goal is to find common successful themes as well as challenges in raising this group of children. I am interested in speaking with parents of children of various ages. It is my hope that... more

The Chemistry Between ASD Individuals and Horses: Using First Person Perspectives of Hippotherapy Experience

This research explores first person accounts of individuals with ASD, who describes their experience with hippotherapy (equine therapy). Specifically, interviews will be used to understand why ASD individuals are often fond of horses. The findings that result from this project will have two implications: 1) it will provide a detailed description... more

Social Behaviours in Adults with Autism Spectrum Conditions

This is an online study looking at autistic adults' social behaviours and links with wellbeing. If you are aged 18 or over and have a diagnosis of an autism spectrum condition, you are eligible to take part. The survey will take around 30 minutes to complete and can be paused and resumed whenever suits you for up to one month after you... more

Participant Database for Persons Interested in Research Studies of Developmental Disorders

Help Us Explore How the Brain Works! Healthy Children/Children with Autism Spectrum Disorders Ages 6 to 17 Needed for Research Studies at Massachusetts General Hospital What we study: The brain: how it works and how it develops How the brain and body affect each other Why some children have developmental disorders, such as... more

Cognitive Function, Social Preferences, & Risk Taking among College Students with Autism Spectrum Disorder or Asperger Syndrome

Website: Help us find out whether ways that young adult men with Autism or Asperger’s regulate their attention and thinking, types of interests they have, and ways they respond in social situations are related to risk taking behavior. Participants must be: Male college students 18 and... more

Research Study on Employment of Adults with Autism

Boston University’s Families and Autism Research Lab is looking for employers who have experience managing/supervising individuals with autism spectrum disorder (ASD). This study focuses on employers’ views about their employee(s) with ASD. The survey should take less than 30 minutes to fill out. If you are currently supervising an employee... more

Using Robotics and Engineering to Positively Affect Social and Emotional Development in Children with Autism

Who: Children ages 7-12 who have been diagnosed with ASD and are high functioning. What: Three 60-minute sessions in which two participants will be given an engineering challenge to design for a robotic pet dinosaur. They will use LEGOs and a variety of craft materials to build to solutions for the robot. When: Wednesdays March 15th, 22nd,... more

Client-Centered Design in Makerspaces to Positively Affect Social, Emotional, and Job-Related Skills in Adolescents with High-Functioning Autism

We are a research team from the Education and Engineering Departments at Tufts University’s who are interested in examining how involvement in client-centered projects completed in Makerspaces helps adolescents with autism spectrum disorder create a context where social and job-related skills are required. Several previous studies conducted by... more

Parents’ Perceptions of the ASD Assessment Process

The study includes 30-minute phone interviews with parents of children who were referred for autism assessment. The goal of the study is to understand parents’ perceptions of the autism assessment process in order to make improvements to the process in the future. All interviews are confidential. Please contact UCLA PhD student Kashia Axthelm... more

A Revolutionary Process for Adults with Aspergers

Please join us for this FREE 6 week process group for adults with Aspergers’ Syndrome. We will use Core Energetics’ techniques to help connect with the self and with others in an aligned way, while strengthening self awareness, and body consciousness. Using movement, breath work and interactive therapy we will explore the energetic blocks... more

Pursuing Happiness: An Investigation of Positive Mental Health in Adolescents with High-Functioning Autism Spectrum Disorder

According to Schalock’s (2004) Emerging Disability Paradigm, researchers have an obligation to study positive traits of individuals with disabilities, including strengths, contributors to life satisfaction, and interventions to improve quality of life. The purpose of the present study is to examine personal strengths and life satisfaction in... more

GAMES Project

Do you know a 7-11 year old with high-functioning autism spectrum disorder? Scientists at Boston Children’s Hospital are seeking children with autism spectrum disorder to help test a new executive function intervention. Executive function skills allow children to manage complex or conflicting information while solving problems. Participation... more

Visual Perception in Autism

We invite you to participate in our research project investigating visual perception in people with Autism Spectrum Conditions (ASC). Our research is looking at how our brain filters visual information in the world, and how attention changes what we see. We hope our findings will provide a better understanding about the differences in vision and... more

Autism Study at the FACE Lab at Emerson College

What is the FACE Lab? We are the Facial Affective and Communicative Expressions (FACE) Lab for Autism Research at Emerson College in Boston, MA. The FACE Lab studies how children with and without autism use their faces, voices, and words to communicate with others, with the hope of eventually improving diagnosis, treatment, and outcomes in this... more

Experience of Parenting a Child with Autism Spectrum Disorder

Hello, my name is Rebecca Glover and I am a graduate student at Washington State University in the psychology department. I am conducting research on the experiences of parenting a child with autism spectrum disorder (ASD) for my master’s thesis. I am inviting caregivers (e.g., biological parent, stepparent, adoptive parent) of one child with... more

Research study for Autistic children aged 3 to 6 years

Website: We are conducting a two-visit research study at the Child Language Lab at Boston University about Autistic Children's linguistic development. During the first visit, we are interested in learning how children on the spectrum understand pronouns like “me” and “you”. Your child would play an... more

Experiences of College Students with Autism Spectrum Disorder

The number of individuals with autism spectrum disorder (ASD) in post-secondary academic settings is increasing. Meanwhile, even though most of these students are well-equipped intellectually for post-secondary education, studies suggest they often struggle with academic achievement, express decreased satisfaction with their post-secondary... more

Urban Space and Autism

Urban space is defined as the spaces between buildings, such as streets, parks and public square. This Study is looking into how architects and urban designers can make urban space in towns and cities more inclusive of neurodiversity, in particular people with autism. If there is anyone (over 18) with autism who would be happy to share their... more

Wandering in children ages 4 and above

Wandering by children with ASD and other developmental disorders is a significant safety concern. It is estimated that more than 250,000 children with disabilities wander away from adult supervision each year. Few researchers have looked at this major issue, and there has been little focus on prevention measures and the impact that wandering... more

Joint Media Engagement among Autistic Children and Families

Are you the parent/guardian of a child age 3-8 on the autism spectrum in the Boston area? Researchers at Northeastern University want to understand how your child uses media and technology with their family members, whether it’s a little or a lot. The information from this study could help parents/guardians and clinicians understand... more

enTRAIN parent-child study: Boston

Website: New opportunity for you and your child to be involved in a fun, play-based study using a new toy developed by researchers at MIT along with cutting-edge wearable technology that can measure heart beats and stress levels. We’re looking for parents and their children who have a diagnosis of an... more


Website: If you are a parent or primary caregiver to a child between the ages of 2-8 years with an Autism Spectrum Disorder or who is typically developing, please participate in an online survey study. Your participation is needed to assist in developing the first eating screening... more

A Study in Perceived Object Functionality

Clemson University’s Autism Research Laboratory, run by Dr. Jennifer Bisson, is investigating socially acceptable object use, focusing on how individuals of various backgrounds differ in their ability to perceive object affordances. Their online survey takes approximately 15-20 minutes to complete and the only qualifications for participation... more

Overhearing in ASD

Can children with autism learn new words through eavesdropping? Researchers at Emerson College and Boston University are conducting a study looking at how overhearing others' conversation supports language development. The goal of this study is to explore this question in children with autism spectrum disorder. This study involves one visit... more

Exploring Perceptions of Weather Information and Risk Understanding in Autistic Populations

This study seeks to examine what autistics/people with autism know about weather. The results of this study will potentially guide meteorologists at the U.S. National Weather Service, and elsewhere across the country, in better communicating life-saving weather information to autistics/people with autism during severe weather events, and in... more

Perceptions of Bullying Behavior

Researchers at Binghamton University are looking for parents of children with or without Autism Spectrum Disorder, as well as educators and other service providers for individuals with special needs to take an online survey about bullying in children with and without Autism Spectrum Disorder. This study has been approved by the Institutional... more

The Autism Sibling Study

Website: The UMass Lowell Autism Sibling Study seeks sibling pairs to participate in a study examining whether aspects of the sibling relationship are related to symptoms of autism, especially Theory of Mind development. We are looking for sibling pairs that consist of: A... more

Family and SLP perspectives on family-centered care for children with ASD: Are we seeing eye-to-eye?

Website: Researchers at Penn State University are conducting an online study to obtain parents' perspectives on the speech-language services that their child with autism spectrum disorder (ASD) receives. Specifically, an online survey will be used to measure the degree to which parents of... more

Testing a novel speech intervention in minimally verbal children with ASD

The study compares two treatments to facilitate speech output in minimally verbal children with ASD aged 6-11. Eligible participants will complete baseline testing at Boston University, be randomly assigned to 25 daily sessions of either music-based or speech-based therapy at BIDMC, and be post-tested again at Boston University. Website:... more

Childhood Experiences with Multilingualism

In this study, we are interested in looking at the experiences of preschool children who regularly hear at least two languages. We will be looking at both children who are typically developing and children who have a diagnosis of autism spectrum disorder (ASD). We are interested in recruiting bilingual children between the ages of 1.5 and 6... more

Theory of Mind in Older Children and Teens with ASD

Website: Email: Harvard University Lab for Developmental Studies is seeking children with Autism Spectrum Disorders (ASD) for a study of cognitive development. Who can participate? Children 5 to 17 years old, whose first language is English. Our lab has other studies,... more

Exploring the Mental Health Landscape of Partners of Individuals with Autism Spectrum Disorder

My name is Laura Lewis and I am a nurse researcher at the University of Vermont. On a personal note, I am also the family member of an adult with ASD. I am looking for individuals who might be willing to participate in a research study about the mental health of partners of adults with Autism Spectrum Disorder (ASD). The study is titled,... more

Transition to Postsecondary Education for Students with HF-ASD

Website: Are you, or is someone you know, the parent of a child who meets ALL of the following criteria? Has a diagnosis of high functioning autism spectrum disorder (HF-ASD), Asperger's syndrome, or Pervasive Developmental Disorder-NOS Plans to attend a post-secondary education setting such as a... more

Cultural Barriers Impacting Service Delivery for Children with Autism Spectrum Disorder

The purpose of this study is to find out about cultural barriers faced by Latino parents that have a child with autism. We will conduct an interview that will take approximately 45-60 minutes with questions about you and your family. You will receive a $35 gift card as for participating! Contact: Rocio Rosales; 978-934-4305 or... more

Participants Needed for Research Study on Emotions

We are currently inviting adults with autism spectrum disorders to participate in a study about emotions and social decision making in the brain. Participants will complete 1-2 hours of functional magnetic resonance imaging (fMRI) scanning and additional behavioral assessments outside the scanner. Participants receive $20/hour for behavioral... more

Brain Connectivity in Children Ages 7-17

The TRANSCEND Research Program at MGH is currently recruiting children with an autism spectrum disorder ages 7-17 to participate in our studies. We use MRI and MEG scans to study brain connectivity and sensory processing in children with autism spectrum disorders. Our current study consists of 2-4 visits to our building in the Charlestown Navy... more

iPad-assisted Speech Training for Autism Spectrum Disorders (ASD)

The purpose of this federally funded study is twofold: To assess the effectiveness of an iPad/computerized based approach to language prosody training in individuals with Autism and Assess transfer of training of iPad/computerized language training to "real world" social situations. The current study focuses on use of an iPad-assisted... more

Sensory Processing in Autism Spectrum Disorder Families

We're looking for parents to complete our online questionnaire about Autism Spectrum Disorder (ASD) traits. The only requirement: biological parent of a child over 4 years old. Upon completion, participants are entered in a lottery for two $50 gift cards. Website:... more

Online Support Group Experiences

This questionnaire intends to find out more about your behavior within online health and social support communities. Health communities include those that have been specifically set up to provide support (health and social support and information) around specific health concerns, conditions and illnesses (including physical and mental health... more

(Paid) Opportunity to Train Research Staff at Boston Children’s Hospital

Researchers in the Laboratories of Cognitive Neuroscience (LCN) at Boston Children's Hospital are seeking volunteers with a diagnosis of Autism Spectrum Disorder (ASD) to participate in a 1-2 hour training opportunity. The purpose of this opportunity is to train our staff on administering assessments used in our research studies. The training... more

Communication Skills in Adults with Autism Spectrum Disorder

Researchers in the Laboratories of Cognitive Neuroscience (LCN) at Boston Children's Hospital are seeking volunteers with a diagnosis of Autism Spectrum Disorder (ASD) to participate in a 1-2 hour training opportunity. The purpose of this opportunity is to train our staff on administering assessments used in our research studies. The training... more

The Influence That Parent Led Autism Support Groups have in Fostering Advocacy Among their Members

For the study, participants will fill out a demographics and screening questionnaire and participate in a brief interview. All participants of the study will remain anonymous. Information gathered from the questionnaires and interviews will remain confidential. The incentive to participate is a $25.00 Visa gift card. Contact:... more

Brain Plasticity TMS Study

Seeking Participants with a Diagnosis of Autism Spectrum Disorder for a research study. What is the study about? The main purpose of this study is to investigate brain plasticity in individuals with Autism Spectrum Disorder (ASD). Research suggests that during development the brains of individuals with ASD may change in response to their... more