Quality of life, Social support, Caregiver Burden, and Stigma of Caregivers for Children and Teens with ASD

Research Study

The prevalence of autism spectrum disorder has drastically increased within the last two decades. Depending on the severity of the condition, caregivers may be severely impacted by the diagnosis. While previous research demonstrates pervasive challenges for caregivers in terms of quality of life, caregiver burden, affiliate stigma, and informal social support, less attention has been given to the interaction of these factors. Furthermore, many of these studies have focused primarily on caucasian populations. There is a paucity of research on the ethnic minorities of this population— particularly in the United States— who experience barriers to timely diagnosis and access to services. Based on current literature, no studies have assessed the associated relationships between affiliate stigma, social support, caregiver burden, and quality of life among minority caregivers of children with autism in the U.S. Our study aims to bridge this gap.

email: caregiverstudy2021@gmail.com

Published on: Apr 16, 2021 at 11:27

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