EDI-Self-Report Study

Research Study

This study is developing a measure to assess emotion management in autistic teens, autistic adults, and adults with intellectual and developmental disabilities. We developed this measure in partnership with autistic adults and teens.

This study is important because there are no existing measures of emotion regulation for autistic teens and adults. Without measures, researchers and clinicians survey parents and caregivers instead of the autistic person. This also limits services and intervention research because we are not able to measure benefits to emotion dysregulation.

This study will result in the first self-report measure of emotion dysregulation in autism. Our measure will also have clinical cut-off scores for screening and will be appropriate to use across clinical populations.

This study is enrolling individuals ages 11 and older who are autistic or have an intellectual or developmental disability (IDD) and their parents/caregivers, as well as individuals without these diagnoses. Individuals must be current United States residents to participate. This study involves completing online surveys and should take 1-2 hours to complete (participants may take breaks), and they will be compensated with a $75 Amazon e-gift card for their time and effort within 10 business days of completing the surveys.

For more information, contact the Project Coordinator at emotionresearch@upmc.edu

Published on: May 2 2023

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