PURPOSE OF STUDY
You are being asked to take part in a research study. Before you decide to participate in this study, it is important that you understand why the research is being done and what it will involve. Please read the following information carefully and if you’re unclear about any of the information please feel free to reach out to me. The purpose of this study is to explain why there are a lack of programs for young adults with mild functioning autism in colleges and what type of program can be implemented to meet the individual needs of each young adult. Over the past few years, autism has increased tremendously yet hasn’t been as relevant as it should be. When administration and the government more fully understand the lack of programs and employment for young adults after high school, they might develop specific and appropriate responses that offer more than generic disciplinary measures and deterrents.
You will be asked questions based on your role either as parent/ guardian of a young adult with mild Autism, a young adult with mild Autism themself, or as a manager/ employeer of a business. The nature of questions for parent’s/ guardians of young adults with mild Autism will allow me to understand there perspective on their child’s experiences. Additionally, the questions I am asking those with mild autism will allow me to gain a deeper knowledge about their experiences. Lastly, the questions I will ask managers/ employeers will allow me to understand their perception of young adults with mild Autism in the workplace. The questions will be in the form of yes/ no questions and short answer questions.
The entire survey process (amount of time to collect all the data from participants) will be about a month or so but the actual survey should only take a few minutes.
You will be asked to share personal experiences involving your mental health and the mental health of your child which you may be uncomfortable sharing. You may decline to answer any or all questions and you may terminate your involvement at any time if you choose.
Because there is such a lack of sufficient programs for young adults with autism in colleges, this research will help benefit many. I am seeking to propose a new program to help these young people. Additionally, it will help me as well as others to understand why many young adults with autism aren’t being employed and how addressing this issue can lead to change.
Your responses to this survey will be anonymous. Please do not write any identifying information on your survey. Every effort will be made by the researcher to preserve your confidentiality including the following:
The survey will be kept anonymous
Participant data will be kept confidential except in cases where the researcher is legally obligated to report specific incidents. These incidents include, but may not be limited to, incidents of abuse and suicide risk.
If you have questions at any time about this study, or you experience adverse effects as a result of participating in this study, you may contact the researcher whose contact information is provided on the first page. If you have questions regarding your rights as a research participant, or if problems arise which you do not feel you can discuss with the Primary Investigator, please contact the Institutional Review Board at (631) 592-3100.
Your participation in this study is voluntary. It is up to you to decide whether or not to take part in this study. If you decide to take part in this study, you will be asked to sign a consent form. After you sign the consent form, you are still free to withdraw at any time and without giving a reason. Withdrawing from this study will not affect the relationship you have, if any, with the researcher. If you withdraw from the study before data collection is completed, your data will be returned to you or destroyed.
I have read and I understand the provided information and have had the opportunity to ask questions. I understand that my participation is voluntary and that I am free to withdraw at any time, without giving a reason and without cost. I understand that I will be given a copy of this consent form. I voluntarily agree to take part in this study.
*Only a minor under the age of 18 needs a Parent/ Guardian’s signature*
Published on: Feb 5, 2020 at 11:05