Parents and Siblings of Adults

The adult services team is here for you every step of the way with your adult child or family member with an Asperger profile. We realize that post high school adult life brings a whole new collection of opportunities and challenges and it is our mission to guide you along the way in this new frontier. Some of you may also find us later in your family member’s life — no matter the age of your adult, it’s not too late to reach out for support and answers.

Essential Resources:

Getting Started for Adults
Diagnosis in Adults
Parent Coaching
Support and Social Groups for Parents of Adults
Fathers Initiative

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The Autism Spectrum, Sexuality and the Law: What every parent and professional needs to know

Recommended Reading
The Autism Spectrum, Sexuality and the Law: What every parent and professional needs to know Jul 21, 2014by Nick Dubin and Isabelle Henault A good resource for families and professionals interested in legal and criminal issues in regards to AS and... more

A Neurotypical Family’s Journey into Aspieland

Article
Karen Lewis delivered this speech on May 15, 2005 at the annual AANE Gala.My goal this evening is to recognize and honor the parents of children with Asperger’s Syndrome and to express thanks to AANE for being there to assist us all as we meet those special challenges of Asperger’s parenthood. As parents, the unique struggles of our... more

Dogs Help Children Find Their Way

Article
North Star Foundation is a nonprofit whose mission is to place assistance dogs with children who face challenges. To date we have helped over forty families meet the social, emotional and educational goals of their children on the autism spectrum, through the use of well-bred, well-trained dogs.Our dogs play a different role than traditional... more

The Self-Discovery of One Aspie Woman

11/09/2016
I had always thought of myself as a sensitive and independent introvert who had found her way after an anxious and lonely childhood. When I hit 40 years old, something shifted – so many of my peers had reached the traditional milestones of marriage, children, home buying, etc., none of which I... more

Finding Housing for Persons with Disabilities

Webinar
Finding housing for people with disabilities does not have to be overwhelming! There are tools and resources for locating housing available to families in Massachusetts that are affordable and accessible. This webinar will provide an overview of the affordable housing programs for persons with disabilities including housing voucher programs,... more

Asperger Fact Sheet

Article
About AS:It is a neurological condition that affects the way information is processed in the brain. AS is a hidden disability. Many people appear very competent, but they have difficulties in the areas of communication and social interaction. AS has a genetic and hereditary component... more

Artist Collaborative

Video
A look into some amazing works of... more

The AANE Community

Video
The AANE community share their... more

AANE Life Management Assistance Program

Video
A short description of the AANE LifeMAP... more

In Our Own Words

Video
Adults with Asperger profiles talk about their experiences and... more

Parallel Play Book Talk

Video
Tim Page, author of Parallel Play, discusses growing up with Asperger Syndrome and making his way in the... more

AANE Gala 2011 Fund-A-Need Speech

Video
Meg Chittenden talks about growing up with a brother with Asperger... more

AANE Gala 2011 Speech

Video
Shonda and Curt Schilling introduce Brenda Dater-who shares stories from the AANE... more

AANE LifeMAP Coaches on Coaching

Video
AANE LifeMAP coaches talk about their coaching... more

Siblings of Asperger Adults Share Their Stories: A Panel Discussion

Video
Hear brothers and sisters of Asperger adults talk about growing up with their sibling on the autism... more

Perspectives on College Life: A Panel Discussion

Video
College students and recent college graduates with Asperger profiles share their experience with college life. They offer what helped them manage the transition to college and thrive in a new... more

Holding on and Letting Go

Webinar
Practical strategies for helping you and your family with the transition to... more

Healthcare Coverage for Adults on the Autism Spectrum

Webinar
Learn about healthcare coverage for adults on the autism... more

Perspectives on Adult Life: Adult Panel Discusses Living with AS/ASD (Part 4 of 4)

Video
Adults share their experiences of growing up and living with Asperger profiles.Part 1 Part 2 Part 3 Part 4 (This... more

Perspectives on Adult Life: Adult Panel Discusses Living with AS/ASD (Part 1 of 4)

Video
Adults share their experiences of growing up and living with Asperger profiles.Part 1 (This Video) Part 2 Part 3 Part... more

Perspectives on Adult Life: Adult Panel Discusses Living with AS/ASD (Part 2 of 4)

Video
Adults share their experiences of growing up and living with Asperger profiles.Part 1 Part 2 (This Video) Part 3 Part... more

Aspertools: The Practical Guide for Understanding and Embracing Asperger’s ASD & Neurodiversity

Webinar
Harold Reitman, MD, author of Aspertools discusses what it means to be... more

Perspectives on Adult Life: An Adult Panel Discusses Living with AS/ASD (Part 3 of 4)

Video
Adults share their experiences of growing up and living with Asperger profiles.Part 1 Part 2 Part 3 (This Video) Part... more

It’s A Two-Way Street Helping the World Communicate with People with Asperger Syndrome

Webinar
Kai Long, a speech language pathologist, discusses communication challenges and strategies that... more

Anxiety Management Techniques

Webinar
Learn a variety of techniques to lower and manage your... more

Transitioning from High School to College or Employment

Webinar
Robin Lurie-Meyerkopf shares practical strategies for transitioning to... more

Know Your Brand of Asperger’s or Related Autism Profile

Webinar
Everyone is different, no exceptions, this video delves into the many traits that people with Asperger profiles may... more

The Hidden Curriculum of Keeping A Job

Webinar
Learn about the hidden rules of the workplace and how you can manage when you are on the autism... more

Enhancing Employment Opportunities for Individuals with Asperger Syndrome and Related Profiles

Webinar
This video discusses the strengths and weaknesses of people who have Asperger Syndrome or related profiles as it relates to the work environment. It focuses on the challenges that those individuals face and the supports that can help them... more

Autism Without Fear: Examining the Legitimacy of Autism Life Coaches

External Resource
Over the last five years there’s been a noticeable increase in people with varying experience levels promoting themselves as “autism life coaches” — people who advertise their services to adults on the spectrum, parents or partners.Read... more

Neurodiversity: The Benefits of Recruiting Employees with Cognitive Disabilities

External Resource
The growing interest in neurodiversity—hiring people with cognitive disabilities like Autism Spectrum Disorder (ASD)—is motivated by companies looking to tap into a largely unnoticed labor pool at a time when many bemoan the lack of skilled... more

The Parent’s Guide to College for Students on the Autism Spectrum

Recommended Reading
This book, written by experienced college disability directors, is the authoritative guide to the subject. Dr. Lorraine Wolf and Dr. Jane Thierfeld Brown lead AANE’s “Preparing for College” workshops, and Dr. Thierfeld Brown offers college consultations to individual teens and their... more

Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome, Second Edition

Recommended Reading
Author, Educator, Musician, Internationally acclaimed speaker and autistic adult offers so much more than the traditional autobiography. Drawing on personal and professional experience, Stephen Shore combines three voices to create a touching and, at the same time, highly informative book for... more

Autism-Asperger’s and Sexuality: Puberty and Beyond

Recommended Reading
Many people on the spectrum never get "the talk" from their parents, and suffer from "information deficit." This book goes a long way toward filling in the gaps in their knowledge. It takes a candid look at aspects of sex and relationships as they apply to people on the autism spectrum:Learn... more

The Hidden Curriculum: Practical Solutions for Understanding Unstated Rules in Social Situations

Recommended Reading
A few years ago, I was speaking with a friend who is on the spectrum when he noted that life would be much easier if someone would just show me the rules. With the publication of The Hidden Curriculum, Myles, Trautman, and Schelvan have done just that. Utilizing concrete examples of hidden... more

Neurotribes: The Legacy of Autism and the Future of Neurodiversity

Recommended Reading
The future of our society depends on our understanding autism. WIRED reporter Steve Silberman unearths the secret history of autism, long suppressed by the same clinicians who became famous for discovering it, and finds surprising answers to the crucial question of why the number of diagnoses has... more

Living Well on the Spectrum: How to Use Your Strengths to Meet the Challenges of…

Recommended Reading
Navigating the "neurotypical" world with an Asperger/Autism profile can be extremely stressful. But by understanding the specific ways your brain works differently--and how to tap into your personal strengths--you can greatly enhance your well-being. In this wise and practical book, experienced... more

Look Me in the Eye: My Life with Asperger’s

Recommended Reading
Ever since he was young, John Robison longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother, Augusten Burroughs, in them)—had... more

Elijah’s Cup: A Family’s Journey into the Community and Culture of High Functioning Autism and…

Recommended Reading
In Elijah's Cup, Paradiz tells the powerful story of her family's struggle with her son's condition, one characterized by social awkwardness, literal-mindedness, and a fixation with particular subjects and interests.Elijah's Cup offers a refreshing take on autism from the perspective of civil... more

Moving Out: A Family Guide to Residential Planning for Adults with Disabilities

Recommended Reading
Finding the right residential situation for an adult child doesn't have to be overwhelming. The authors share decades of experience counseling families on housing options to help parents prepare themselves and their children for a new living arrangement. Discover the universal considerations most... more

Legal Planning For Special Families in Massachusetts: A Family Guide to SSI, Guardianship and Estate…

Recommended Reading
Attorney and parent Barbara Jackins' new book is a must have resource for parents of children with special needs and the professionals and advocates who assist them. In an easy-to-read, conversational style, Jackins, the lead author of Special Needs Trust Administration Manual: A Guide for... more

Life, Animated

Recommended Reading
This is the real-life story of Owen Suskind, the son of the Pulitzer Prize-winning journalist Ron Suskind and his wife, Cornelia. An autistic boy who couldn't speak for years, Owen memorized dozens of Disney movies, turned them into a language to express love and loss, kinship, brotherhood.The... more

Asperger’s and Self-Esteem: Hope Through Famous Role Models

Recommended Reading
Not every person with an Asperger profile is an Einstein--but it can be comforting and inspiring to know that Einstein, Mozart, Gregor Mendel, Mme. Curie, and others had some of the same struggles--and managed to make huge contributions to humankind.Learn More and... more

Living Sensationally

Recommended Reading
Winnie Dunn has worked with many people with Asperger profiles. Based on her deep understanding of how their sensory issues impact their experience and functioning, she offers strategies to creating more hospitable environments and practical solutions. The book is refreshingly concise, with handy... more

Asperger Profiles: Emotions and Empathy

Article
People with Asperger profiles absolutely do have feelings, although they may have difficulty identifying and discussing them. In fact, many feelings – such as fear, anger and joy – seem to be experienced more intensely by those with Asperger profiles than by average people. In addition, some... more

Asperger Profiles: Environmental Influences

Article
There is some suggestion that environmental factors play a part in influencing certain characteristics of Asperger profiles, or may even affect the expression of genes. The emerging field of epigenetics, the study of the ways in which physiology can be shaped by external factors, might shed more light on this topic moving forward. We do know that... more

Disclosure in College

Article
Scott was one of two student panelists at AANE's spring 2012 "Perspectives on College Life" program.My name is Scott Finkelstein and I just graduated from Brandeis University. I actually finished a semester early and am currently looking for a job (in case any of you are hiring…), but I will walk with the class of 2012 in the spring.One... more

Asperger Profiles: Cultural Influences

Article
We live in a rapidly changing society that can be more hospitable to some people than to others. The rate of social and cultural change in and of itself can be overwhelming to those who typically struggle with transitions. Many people with an Asperger profile can easily feel over-stimulated by lights, sounds, and textures. In an increasingly... more

Considering the Needs of Siblings of Individuals With Asperger Profiles

Article
It is important that families of children with Asperger profiles also consider the special needs of the neurotypical (NT) siblings of these children. The good news is that studies comparing “typical” siblings of children with special needs to matched siblings have found the first group to have no greater chance of having psychological problems... more

Asperger Profiles: Genetics

Article
Nobody knows for sure what causes an Asperger profile. Current research indicates that there is a genetic foundation for this constellation of traits, involving a number of different genes. So it is not surprising that when a person receives an Asperger/ASD diagnosis, the family often realizes that... more

Asperger Profiles: Independent and Interdependent Living

Article
Some adults with Asperger profiles are able to lead completely independent lives; others need some assistance, particularly in the areas of housekeeping, money management, and meal preparation; and still others will require more substantial supports in their living arrangements. There is no reliable way to predict the level of support a child will... more

Asperger Profiles: Language and Communication

Article
Many people with Asperger profiles have complex vocabularies and sophisticated speech, but using language to communicate, also called pragmatics, is a different matter. The rules of everyday conversation that come intuitively to most people have to be actively learned by individuals with Asperger profiles. Difficulties arise in two spheres. First,... more

Neurodiversity

Article
Diagnostic labels, by nature, define disorders and tend to ignore the strengths, gifts, and adaptive benefits of the individuals diagnosed. In contrast to this, the Asperger constellation of traits has more recently been described as the product of natural variations in human neurology that lead to differences in individual experiences,... more

Asperger Profiles: Common Characteristics

Article
As we look in detail at some strengths and challenges you might see in a person with an Asperger profile, keep in mind that people with these profiles are not all alike; they may differ from one another even more in respect to their areas of strength than in their areas of challenge.Possible Asperger StrengthsCommon Asperger... more

Asperger Profiles: Developmental Delays

Article
Every person with Asperger Syndrome is developmentally delayed, not intellectually, but at the social-emotional level. This delay can be significant; for example, a 21-year-old may seem socially and emotionally more like a 14-year-old. The social consequences of being developmentally delayed often become particularly conspicuous during the middle... more

On the Transition to Adulthood

Article
As I look back on my teenage years and early twenties, some themes emerge in my transition to adulthood. I gradually took on more and more responsibility for my own welfare. Because it was gradual, I never felt overwhelmed. I was also able to get advice from others to help me at various points. This advice helped me immensely. Unfortunately, there... more

Asperger Profiles: Successful Adults

Article
People with Asperger profiles can and are successful writers, doctors, artists, professors, scientists, therapists, and executives among many other careers. Because the diagnosis is relatively new, few living high-profile adults have disclosed their own Asperger diagnoses. Among those who have disclosed their diagnoses include comedian Dan Aykroyd... more

Seek Alternative Routes: AS at 75

Article
In the year 2002, when I was seventy-one years old, I read a book review in the Times Literary Supplement (London). The author of the biography under review speculated that his subject might have suffered from Asperger’s. I recognized that the symptoms enumerated also applied to me. After further research, it seemed intuitively obvious to me... more

Asperger Profiles: Understanding Strengths and Challenges

Article
When parenting, teaching, befriending, treating, working alongside, or supervising someone with an Asperger profile:Consider both the person’s challenges and his or her strengths. Balance acceptance with teaching necessary skills. Strengths-based interventions foster hope, inspiration, and energy. People with Asperger profiles... more

Asperger Syndrome and Anxiety: A Guide to Successful Stress Management

Recommended Reading
Many people suffer from feelings of stress and anxiety in their everyday lives. For people with Asperger Syndrome (AS), this stress can be particularly difficult to manage. On a daily basis people with AS must fit into a world that seems totally foreign to them and this can increase feelings of... more

Ask and Tell: Self-Advocacy and Disclosure for People on the Autism Spectrum

Recommended Reading
Edited by Stephen Shore, Ask and Tell aims to help autistic people effectively self-advocate in their pursuit of independent, productive, and fulfilling lives. Ask and Tell is unique by being the first book to speak to the twin issues of self-advocacy and disclosure for people on the... more

Aspergirls: Empowering Females with Asperger Syndrome

Recommended Reading
Girls with Asperger/Autism profiles are less frequently diagnosed than boys, and even once symptoms have been recognized, help is often not readily available. The image of coping well presented by AS females of any age can often mask difficulties, deficits, challenges, and loneliness. This is a... more

Parenting without Panic: A Pocket Support Group for Parents of Children and Teens on the…

Recommended Reading
Ever wish that parenting a child or teen on the autism spectrum came with instant access to a support group? Brenda Dater has provided parents with exactly that. In this book she draws on her extensive experience as a support group leader and parent of a child on the spectrum to offer trusted... more

Journal of Best Practices: A Memoir of Marriage, Asperger Syndrome, and One Man’s Quest to…

Recommended Reading
At some point in nearly every marriage, a wife finds herself asking, What the @#!% is wrong with my husband?! In David Finch’s case, this turns out to be an apt question. Five years after he married Kristen, the love of his life, they learn that he has Asperger syndrome. The diagnosis explains... more

Principles for Prosecutors Considering Child Pornography Charges Against People with Asperger Profiles

Article
Preface Among the difficulties faced by young persons afflicted with Asperger's Syndrome (AS) and their families is the misinterpretation of the atypical behavior of the AS patient as dangerous and criminal. AS, defined in DSM-IV, is an “Autism Spectrum Disorder” (ASD) typified by extreme social and emotional immaturity, the inability to... more

Review of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity by Steve Silberman

Article
NeuroTribes by Steve Silberman is, to put it in the simplest terms, the definitive history of scientific and popular knowledge of Autism in the western world. After a brief introduction detailing how Silberman became involved with journalistic accounts of autistic people and the scientific studies pertaining to them, the book opens with a... more

Who’s on Your Team?

Article
Many children with Asperger Syndrome (AS) are fortunate enough to have a team of people to support and work with them. In addition to parents, the team can include any number of professionals who think about, focus on, and implement recommendations to address the specific needs that arise as a result of AS. Although some people on the team may... more

Don’t Mourn for Us

Article
This article was published in the Autism Network International newsletter, Our Voice, Volume 1, Number 3, 1993. It is an outline of the presentation Jim gave at the 1993 International Conference on Autism in Toronto, and is addressed primarily to parents. Parents often report that learning their child is autistic was the most... more

Asperger Profiles: The Big Picture – Strengths

Article
People with Asperger profiles present with a complex and at times perplexing combination of strengths and challenges.Asperger brains process some kinds of information better than the brains of neurotypical people. Dr. Hans Asperger (1906-1980) said: “It seems that for success in science or art, a dash of autism is essential.” ... more

Asperger Profiles: The Big Picture-Challenges

Article
While respecting the abilities and humanity of people with Asperger profiles, one should not underestimate their struggles and suffering they might endure. A society designed for and dominated by the neurotypical majority can feel uncongenial and even overwhelming for a person with an Asperger... more

The Dating Scene — Are You Interested?

Article
Let’s look at dating as a pastime for teens, young adults, and adults. Webster says a pastime is “something that amuses and serves to pass time agreeably.” That is dating at its best. Most of us know that it also produces times of high anxiety, anger, sadness, and confusion. Dating, after all, is one kind of relationship, and all... more

Should You Disclose Asperger Syndrome to Your Employer?

Article
Coaching clients frequently ask me whether they should disclose their disability to an employer. My answer is, “It depends.” The best approach is to develop a personalized plan based on the many factors that affect employment outcomes. These factors include an individual’s job skills, primary challenges, employment history and... more

Living with an Asperger Profile for Adults

Article
For more than two decades, AANE staff have learned about the talents and struggles of adults with Asperger profiles. Working closely and talking extensively with adults with Asperger’s, ranging in age from 18 to 83, along with their parents, relatives, and spouses, we have together explored successful strategies for addressing the challenges of... more

Disclosure for Adults

Article
Introduction Disclosure is the process of making known what was previously unknown. This can mean an individual disclosing to others their suspicion of, or diagnosis of, their own Asperger profile. Additionally, this can refer to the process of a person suggesting to another that they might fit the description. In more broad terms, disclosure... more

Disability Aspects of Asperger Syndrome

Article
This article is a general review of the pertinence of social security disability benefits to impairments presenting limitations associated with Asperger Syndrome. The author, an administrative law judge for the office of hearings and appeals of the social security administration, submits this article in his private capacity, without official... more

Autism Spectrum and Mental Illness: Misdiagnosis or Co-Occurring Condition?

Article
On their way to receiving an Autism Spectrum diagnosis, many people find themselves labelled with a variety of other conditions. These may include, but are not limited to, Attention Deficit/Hyperactivity Disorder (ADHD), Major Depressive Disorder, Bipolar Disorder, Obsessive-Compulsive Disorder (OCD), Generalized Anxiety Disorder, Post-Traumatic... more

Employment & Social Security Benefits for Adults with Asperger Profiles

Article
Since most children with Asperger profiles appear to require some interventions, supports, or modifications to enable them to succeed in school, it seems reasonable to assume that many adults with Asperger profiles will require at least some supports or special conditions in the workplace. One of the most common concerns adults report to AANE is... more

Asperger Profiles: Invisibility

Article
It is important to understand and respect that someone with perceptual differences might need support while navigating a social landscape and culture predominantly shaped by neurotypical influences; their challenges may not be obvious to others. The gap between intellectual ability and functional presentation complicates the Asperger experience... more

How Parent Coaching Helped Me

Video
Katie shares how parent coaching has helped her family. Sign up for Parent Coaching... more

How Parent Coaching Helped Me

Video
Ross Kramer shares how Parent Coaching helped his family get on the right track.Sign up for Parent... more