Decision Making in Autism Spectrum Disorder

Research Study

Dr. John Knutsen at MassGeneral Hospital for Children is leading a study to help improve the care for children with ASD. The goal of our project is to identify ways to improve and make easier communication between parents of young children diagnosed within the past two years with autism spectrum disorder (ASD) and their child’s pediatrician and clinical specialists. We want to speak to parents like you because you are the real experts on your children, and your input can help improve future care for children with ASD.

We would like to know if it is okay for ione of Dr. Knutsen’s staff members to contact you to explain the study and see if you are eligible to do an interview with us. The interview, which can be conducted over the phone or in-person, is 45-60 minutes and asks questions about treatment options for your child and how you arrived at making them. Contacting a staff member does not mean you have to do the interview. You can choose if you want to do the interview after you hear more about it.

This study is voluntary. This means you can choose if you want to be in the study. You can also decide not to participate at a later time if you change your mind about being in the study.

If you are ever uncomfortable answering questions asked in the study, you may stop at any time. There are no foreseeable risks to you or your child. There is no direct benefit to being in the study, but we hope the results will help improve future care for children with ASD. If you do the interview, we will give you a $50 gift card and we will cover your parking or public transportation for in-person interviews.

If you are interested in participating in our study please contact Michael Duggan either by phone (617-643-5469) or email: mduggan11@mgh.harvard.edu